Mogućnosti razvoja pedijatrijske palijativne skrbi u zdravstvenom sustavu Republike Hrvatske

professional thesis

• Title (english): Possibilities for development of a pediatric palliative care in the Croatian health system
• Author: Gordana Šimunković
• Mentor: Aleksandar Džakula (mentor)
• Granter: University of Zagreb; School of Medicine; Zagreb
• Defense date and country: 2023-04-24, Croatia
• Scientific / art field, discipline and subdiscipline: BIOMEDICINE AND HEALTHCARE; Public Health and Health Care; Public Health

Abstract

Palijativna skrb je pristup koji unaprjeđuje kvalitetu života pacijenata (odraslih i djece) i njihove obitelji i to onih koji su suočeni s problemima vezanima uz životno ugrožavajuće bolesti, kroz prevenciju i olakšanje patnje sredstvima rane identifikacije i ispravne procjene i tretmana boli i drugih problema (fizičkih, psiholoških, socijalnih, duhovnih, pravnih). U politikama zdravstvene skrbi Republike Hrvatske pedijatrijska palijativna skrb opisuje se kao područje kojem je potrebno odrediti opće i specifične odrednice kako bi se omogućio njen daljnji razvoj. Kako bi se odgovorilo na tu potrebu, provedena je analiza nacionalnih i lokalnih strateških dokumenata, analiza izvješća odabranih značajnih organizacija i dostupnih statističkih podataka te intervjui s ključnim dionicima o stanju i perspektivi pedijatrijske palijativne skrbi. Na temelju intervjua provedena je procjena razine spremnosti zdravstvenog sustava za daljnji razvoj pedijatrijske palijativne skrbi prema modelu spremnosti zajednice, dane su smjernice za pomak spremnosti na višu razinu i provedena je tematska analiza intervjua. Svi podaci utvrđeni kroz provedene analize i intervjue, prikazani su kroz SWOT analizu tj. snage, slabosti, prilike i prijetnje za razvoj pedijatrijske palijativne skrbi u Republici Hrvatskoj. Rezultati ukazuju da je pedijatrijska palijativna skrbi više deklarativni nego praktični interes što je prepoznato ključnim za njen daljnji razvoj.

Abstract (english)

Palliative care is an approach that improves the quality of life of patients (adults and children) and their families - those who face problems related to life-threatening diseases, through prevention and alleviation of suffering by means of early identification and proper assessment and treatment of pain and other problems (psychological, social, spiritual, legal). In the health care policy of the Republic of Croatia, pediatric palliative care is described as an area that needs to be defined in general and specific terms to enable its further development. In order to respond to this need, an analysis of national and local strategic documents, analysis of reports of relevant organizations and interviews with key stakeholders in pediatric palliative care has been conducted. Based on the interviews, according to the community readiness model, an assessment of the level of readiness of the health system was conducted and guidelines for moving readiness to a higher level were given. All data detected through analyzes and interviews are presented through SWOT analysis (strengths, weaknesses, opportunities, threats) for the development of pediatric palliative care in the Republic of Croatia. The results indicate that pediatric palliative care is more a declarative than a practical interest to the leadership, which has been identified as crucial for its further development.

• Keywords: pedijatrijska palijativna skrb; prava djece; zdravstveni sustav; spremnost zajednice; analiza politika
• Keywords (english): pediatric palliative care; child's rights; health system; community readiness; policy analysis
• Language: croatian
• URN:NBN: urn:nbn:hr:105:829510
• Study programme: Title: Public health medicine; Study programme type: university; Study level: postgraduate specialist; Academic / professional title: sveučilišni/a magistar/magistra javnozdravstvene medicine (sveučilišni/a magistar/magistra javnozdravstvene medicine)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2024-01-26 09:55:50