Komunikacija roditelja i medicinskih sestara tijekom liječenja djece s malignim bolestima

master's thesis

• Title (english): Parent-nurse communication during the treatment of children with malignant diseases
• Author: Katarina Kovačević
• Mentor: Slavica Sović (mentor)
• Committee member: Marjeta Majer (predsjednik povjerenstva)
• Committee member: Sanja Musić Milanović (član povjerenstva)
• Committee member: Slavica Sović (član povjerenstva)
• Granter: University of Zagreb; School of Medicine; (Department of Medical Statistics, Epidemiology and Medical Informatics); Zagreb
• Defense date and country: 2017-09-29, Croatia
• Scientific / art field, discipline and subdiscipline: BIOMEDICINE AND HEALTHCARE; Public Health and Health Care; Epidemiology

Abstract

Cilj: Cilj rada je prikazati percepciju roditelja djece koja se liječe zbog malignih bolesti o komunikaciji s medicinskim sestrama. Svrha mu je prepoznati očekivanja, teškoće i prijedloge za unaprjeđenje komunikacije roditelja djece koja se liječe zbog malignih bolesti s medicinskim sestrama.
Metode: U radu je prikazano kvalitativno istraživanje, u kojem je sudjelovalo 10 roditelja djece koja se liječe na Zavodu za hematologiju onkologiju i transplantaciju krvotvornih matičnih stanica Klinike za pedijatriju KBC-a Zagreb. Podaci su prikupljeni metodom polustrukturiranog intervjua, a u obradi je korištena metoda usmjerene analize sadržaja.
Rezultati: Istraživanjem su dobivene četiri teme istraživanja: iskustva na početku liječenja djece s malignim bolestima; iskustva roditelja tijekom bolničkog liječenja djece s malignim bolestima; komunikacija roditelja s roditeljima druge djece s malignim bolestima tijekom bolničkog liječenja i uređenost bolničkih prostorija. Svaka od tema je razrađena pomoću kategorija koje su, po potrebi,podijeljene u potkategorije. Za početak liječenja najbitnije je pravovremeno postavljanje dijagnoze i način priopćavanja dijagnoze roditeljima. Roditelji prolaze kroz nekoliko faza prihvaćanja dijagnoze. Drugu tema ključna je za ovaj rad u kojem je opisan odnos medicinske sestre prema djeci, stvaranje privrženosti i povjerenja. Komunikacija medicinskih sestara s roditeljima djece koja se liječe od malignih oboljenja neophodni je dio u procesu liječenja djece. Medicinska sestra je u skrbi za bolesno dijete 24 sata i ona najbolje i najtočnije daje informacije kako je dijete spavalo tijekom noći, je li imalo povišenu temperaturu, primilo određeni lijek, jelo,.. Pravodobne informacije umanjuju strah i tjeskobu kod roditelja. Roditelji su svjesni da zbog manjka liječnika na Zavodu previše ispituju medicinske sestre i za ono o čemu one ne bi trebale davati informacije. Međusobna izmjena iskustava roditelja neminovna su i potrebna. Ali ponekad ta iskustva mogu otežati stanja prilagodbe. Svaki roditelj govori iskustva iz svoje perspektive i svoga vremena. Pozitivna izmjena iskustava vode napretku i međusobnoj izgradnji. Negativna iskustva su najčešće prigovori i predrasude.
Zaključak: Iz provedenog istraživanja zaključuje se da roditelji djece koja se liječe od malignih bolesti imaju potrebu unaprjeđenja komunikacije s medicinskim sestrama.

Abstract (english)

Objective: The aim of this paper was to show perception of parents whose children receive treatment for malignant diseases related to interpersonal communication with nurses. The purpose was to identify expectations, difficulties and suggestions for improving parents’ communication with nurses.
Method: This paper represents a qualitative study involving ten parents whose children receive treatment at the paediatric Department of Haematology and Oncology of Clinical Hospital Centre Zagreb. The data collection involves conducting qualitative semi-structured interviews, and using qualitative content analysis in process.
Results: The research provided four themes: parents’ experience during early treatment of children with malignant diseases; parents' experience during hospital treatment; communication between parents, and the interior arrangement of hospital rooms. Elaboration of each theme is done by using categories that are subdivided into subcategories and codes. For parents’ experience during early treatment, the most important is to set the timely diagnosis and initiate treatment as soon as possible. Parents go through several acceptance stages of the diagnosis. For the second theme, parents’ experience during hospital treatment is crucial for nurses to develop a relationship with children to establish attachment and trust. Communication between nurses and parents whose children receive treatment for malignant diseases is essential part of the process during children’s treatment. Nurses provide 24-hour medical care to ill children and nurses are the most accurate source of information about children’s condition, meaning how the child slept through the night, body temperature levels, received treatment, child’s appetite. Providing timely information to parents decreases parents’ fear and anxiety level. Parents are aware that due to the shortage of doctors at the institute their only option is to ask nurses for information that nurses are not at liberty to disclose. Mutual information exchange between parents is inevitable and necessary. Nevertheless, sometimes these experiences may complicate the acceptance stages since each parent has their own experiences coming from their own perspective. A positive exchange of experiences between parents lead to progress while negative experiences are commonly objections and prejudices.
Conclusion: the research concludes the need for improving communication between nurses and parents whose children receive treatment for malignant diseases.

• Keywords: komunikacija; roditelj; medicinska sestra; maligne bolesti; hospitalizacija
• Keywords (english): communication; parents; nurse; malignant diseases; hospitalization
• Language: croatian
• URN:NBN: urn:nbn:hr:105:569467
• Study programme: Title: Studies in Nursing; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra sestrinstva (magistar/magistra sestrinstva)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2018-03-21 12:13:14