Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)

Sinning, Christoph; Zengin, Elvin; Diller, Gerhard‐Paul; Onorati, Francesco; Castel, María‐Angeles; Petit, Thibault; Chen, Yih‐Sharng; Lo Rito, Mauro; Chiarello, Carmelina; Guillemain, Romain; Coniat, Karine Nubret‐Le; Magnussen, Christina; Knappe, Dorit; Becher, Peter Moritz; Schrage, Benedikt; Smits, Jacqueline M.; Metzner, Andreas; Knosalla, Christoph; Schoenrath, Felix; Miera, Oliver; Cho, Mi‐Young; Bernhardt, Alexander; Weimann, Jessica; Goßling, Alina; Terzi, Amedeo; Amodeo, Antonio; Alfieri, Sara; Angeli, Emanuela; Ragni, Luca; Napoleone, Carlo Pace; Gerosa, Gino; Pradegan, Nicola; Rodrigus, Inez; Dumfarth, Julia; Pauw, Michel; François, Katrien; Van Caenegem, Olivier; Ancion, Arnaut; Van Cleemput, Johan; Miličić, Davor; Moza, Ajay; Schenker, Peter; Thul, Josef; Steinmetz, Michael; Warnecke, Gregor; Ius, Fabio; Freyt, Susanne; Avsar, Murat; Sandhaus, Tim; Haneya, Assad; Eifert, Sandra; Saeed, Diyar; Borger, Michael; Welp, Henryk; Ablonczy, László; Schmack, Bastian; Ruhparwar, Arjang; Naito, Shiho; Hua, Xiaoqin; Fluschnik, Nina; Nies, Moritz; Keil, Laura; Senftinger, Juliana; Ismaili, Djemail; Kany, Shinwan; Csengeri, Dora; Cardillo, Massimo; Oliveti, Alessandra; Faggian, Giuseppe; Dorent, Richard; Jasseron, Carine; Blanco, Alicia Pérez; Márquez, José Manuel Sobrino; López‐Vilella, Raquel; García‐Álvarez, Ana; López, María Luz Polo; Rocafort, Alvaro Gonzalez; Fernández, Óscar González; Prieto‐Arevalo, Raquel; Zatarain‐Nicolás, Eduardo; Blanchart, Katrien; Boignard, Aude; Battistella, Pascal; Guendouz, Soulef; Houyel, Lucile; Para, Marylou; Flecher, Erwan; Gay, Arnaud; Épailly, Éric; Dambrin, Camille; Lam, Kaitlyn; Ka‐lai, Cally Ho; Cho, Yang Hyun; Choi, Jin‐Oh; Kim, Jae‐Joong; Coats, Louise; Crossland, David Steven; Mumford, Lisa; Hakmi, Samer; Sivathasan, Cumaraswamy; Fabritz, Larissa; Schubert, Stephan; Gummert, Jan; Hübler, Michael; Jacksch, Peter; Zuckermann, Andreas; Laufer, Günther; Baumgartner, Helmut; Giamberti, Alessandro; Reichenspurner, Hermann; Kirchhof, Paulus

doi:10.1002/ehf2.13574

prikaz prve stranice dokumenta Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)

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Scientific paper - Original scientific paper

Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)

ESC Heart Failure, 8 (2021), 6; 5542-5550. https://doi.org/10.1002/ehf2.13574

Sinning, Christoph; Zengin, Elvin; Diller, Gerhard‐Paul; Onorati, Francesco; Castel, María‐Angeles; Petit, Thibault; Chen, Yih‐Sharng; Lo Rito, Mauro; Chiarello, Carmelina; Guillemain, Romain; Coniat, Karine Nubret‐Le; Magnussen, Christina; Knappe, Dorit; Becher, Peter Moritz; Schrage, Benedikt; Smits, Jacqueline M.; Metzner, Andreas; Knosalla, Christoph; Schoenrath, Felix; Miera, Oliver; Cho, Mi‐Young; Bernhardt, Alexander; Weimann, Jessica; Goßling, Alina; Terzi, Amedeo; Amodeo, Antonio; Alfieri, Sara; Angeli, Emanuela; Ragni, Luca; Napoleone, Carlo Pace; Gerosa, Gino; Pradegan, Nicola; Rodrigus, Inez; Dumfarth, Julia; Pauw, Michel; François, Katrien; Van Caenegem, Olivier; Ancion, Arnaut; Van Cleemput, Johan; Miličić, Davor; Moza, Ajay; Schenker, Peter; Thul, Josef; Steinmetz, Michael; Warnecke, Gregor; Ius, Fabio; Freyt, Susanne; Avsar, Murat; Sandhaus, Tim; Haneya, Assad; Eifert, Sandra; Saeed, Diyar; Borger, Michael; Welp, Henryk; Ablonczy, László; Schmack, Bastian; Ruhparwar, Arjang; Naito, Shiho; Hua, Xiaoqin; Fluschnik, Nina; Nies, Moritz; Keil, Laura; Senftinger, Juliana; Ismaili, Djemail; Kany, Shinwan; Csengeri, Dora; Cardillo, Massimo; Oliveti, Alessandra; Faggian, Giuseppe; Dorent, Richard; Jasseron, Carine; Blanco, Alicia Pérez; Márquez, José Manuel Sobrino; López‐Vilella, Raquel; García‐Álvarez, Ana; López, María Luz Polo; Rocafort, Alvaro Gonzalez; Fernández, Óscar González; Prieto‐Arevalo, Raquel; Zatarain‐Nicolás, Eduardo; Blanchart, Katrien; Boignard, Aude; Battistella, Pascal; Guendouz, Soulef; Houyel, Lucile; Para, Marylou; Flecher, Erwan; Gay, Arnaud; Épailly, Éric; Dambrin, Camille; Lam, Kaitlyn; Ka‐lai, Cally Ho; Cho, Yang Hyun; Choi, Jin‐Oh; Kim, Jae‐Joong; Coats, Louise; Crossland, David Steven; Mumford, Lisa; Hakmi, Samer; Sivathasan, Cumaraswamy; Fabritz, Larissa; Schubert, Stephan; Gummert, Jan; Hübler, Michael; Jacksch, Peter; Zuckermann, Andreas; Laufer, Günther; Baumgartner, Helmut; Giamberti, Alessandro; Reichenspurner, Hermann; Kirchhof, Paulus More authors...

Cite this document

APA 6th Edition

Sinning, C., Zengin, E., Diller, G., Onorati, F., Castel, M., Petit, T. ... Kirchhof, P. (2021). Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R). ESC Heart Failure, 8. (6), 5542-5550. doi: 10.1002/ehf2.13574

MLA 8th Edition

Sinning, Christoph, et al. "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)." ESC Heart Failure, vol. 8, no. 6, 2021, pp. 5542-5550. https://doi.org/10.1002/ehf2.13574

Chicago 17th Edition

Sinning, Christoph, Elvin Zengin, Gerhard‐Paul Diller, Francesco Onorati, María‐Angeles Castel, Thibault Petit, Yih‐Sharng Chen, et al. "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)." ESC Heart Failure 8, no. 6 (2021): 5542-5550. https://doi.org/10.1002/ehf2.13574

Harvard

Sinning, C., et al. (2021) 'Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)', ESC Heart Failure, 8(6), pp. 5542-5550. doi: 10.1002/ehf2.13574

Vancouver

Sinning C, Zengin E, Diller G, Onorati F, Castel M, Petit T, and sur.. Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R). ESC Heart Failure [Internet]. 2021 December [cited 2024 July 18];8(6):5542-5550. doi: 10.1002/ehf2.13574

IEEE

C. Sinning, et al., "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)", ESC Heart Failure, vol. 8, no. 6, pp. 5542-5550, December 2021. [Online]. Available at: https://urn.nsk.hr/urn:nbn:hr:105:524548. [Accessed: 18 July 2024]

Cite this item: https://urn.nsk.hr/urn:nbn:hr:105:524548

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Metadata

Title (english)	Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)
Author	Christoph Sinning
Author	Elvin Zengin
Author	Gerhard‐Paul Diller
Author	Francesco Onorati
Author	María‐Angeles Castel
Author	Thibault Petit
Author	Yih‐Sharng Chen
Author	Mauro Lo Rito
Author	Carmelina Chiarello
Author	Romain Guillemain
Author	Karine Nubret‐Le Coniat
Author	Christina Magnussen
Author	Dorit Knappe
Author	Peter Moritz Becher
Author	Benedikt Schrage
Author	Jacqueline M. Smits
Author	Andreas Metzner
Author	Christoph Knosalla
Author	Felix Schoenrath
Author	Oliver Miera
Author	Mi‐Young Cho
Author	Alexander Bernhardt
Author	Jessica Weimann
Author	Alina Goßling
Author	Amedeo Terzi
Author	Antonio Amodeo
Author	Sara Alfieri
Author	Emanuela Angeli
Author	Luca Ragni
Author	Carlo Pace Napoleone
Author	Gino Gerosa
Author	Nicola Pradegan
Author	Inez Rodrigus
Author	Julia Dumfarth
Author	Michel Pauw
Author	Katrien François
Author	Olivier Van Caenegem
Author	Arnaut Ancion
Author	Johan Van Cleemput
Author	Davor Miličić
Author	Ajay Moza
Author	Peter Schenker
Author	Josef Thul
Author	Michael Steinmetz
Author	Gregor Warnecke
Author	Fabio Ius
Author	Susanne Freyt
Author	Murat Avsar
Author	Tim Sandhaus
Author	Assad Haneya
Author	Sandra Eifert
Author	Diyar Saeed
Author	Michael Borger
Author	Henryk Welp
Author	László Ablonczy
Author	Bastian Schmack
Author	Arjang Ruhparwar
Author	Shiho Naito
Author	Xiaoqin Hua
Author	Nina Fluschnik
Author	Moritz Nies
Author	Laura Keil
Author	Juliana Senftinger
Author	Djemail Ismaili
Author	Shinwan Kany
Author	Dora Csengeri
Author	Massimo Cardillo
Author	Alessandra Oliveti
Author	Giuseppe Faggian
Author	Richard Dorent
Author	Carine Jasseron
Author	Alicia Pérez Blanco
Author	José Manuel Sobrino Márquez
Author	Raquel López‐Vilella
Author	Ana García‐Álvarez
Author	María Luz Polo López
Author	Alvaro Gonzalez Rocafort
Author	Óscar González Fernández
Author	Raquel Prieto‐Arevalo
Author	Eduardo Zatarain‐Nicolás
Author	Katrien Blanchart
Author	Aude Boignard
Author	Pascal Battistella
Author	Soulef Guendouz
Author	Lucile Houyel
Author	Marylou Para
Author	Erwan Flecher
Author	Arnaud Gay
Author	Éric Épailly
Author	Camille Dambrin
Author	Kaitlyn Lam
Author	Cally Ho Ka‐lai
Author	Yang Hyun Cho
Author	Jin‐Oh Choi
Author	Jae‐Joong Kim
Author	Louise Coats
Author	David Steven Crossland
Author	Lisa Mumford
Author	Samer Hakmi
Author	Cumaraswamy Sivathasan
Author	Larissa Fabritz
Author	Stephan Schubert
Author	Jan Gummert
Author	Michael Hübler
Author	Peter Jacksch
Author	Andreas Zuckermann
Author	Günther Laufer
Author	Helmut Baumgartner
Author	Alessandro Giamberti
Author	Hermann Reichenspurner
Author	Paulus Kirchhof
Author's institution	University of Zagreb School of Medicine (Department of Internal Medicine)
Scientific / art field, discipline and subdiscipline	BIOMEDICINE AND HEALTHCARE Clinical Medical Sciences Internal Medicine
Abstract (english)	Aim: Due to improved therapy in childhood, many patients with congenital heart disease reach adulthood and are termed adults with congenital heart disease (ACHD). ACHD often develop heart failure (HF) as a consequence of initial palliative surgery or complex anatomy and subsequently require advanced HF therapy. ACHD are usually excluded from trials evaluating heart failure therapies, and in this context, more data about heart failure trajectories in ACHD are needed to guide the management of ACHD suffering from HF. ----- Methods and results: The pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA-R) will collect data from ACHD evaluated or listed for heart or heart-combined organ transplantation from 16 countries in Europe and the Asia/Pacific region. We plan retrospective collection of data from 1989-2020 and will include patients prospectively. Additional organizations and hospitals in charge of transplantation of ACHD will be asked in the future to contribute data to the register. The primary outcome is the combined endpoint of delisting due to clinical worsening or death on the waiting list. The secondary outcome is delisting due to clinical improvement while on the waiting list. All-cause mortality following transplantation will also be assessed. The data will be entered into an electronic database with access to the investigators participating in the register. All variables of the register reflect key components important for listing of the patients or assessing current HF treatment. ----- Conclusion: The ARTORIA-R will provide robust information on current management and outcomes of adults with congenital heart disease suffering from advanced heart failure.
Keywords (english)
Language	english
Publication type	Scientific paper - Original scientific paper
Publication status	Published
Peer review	Peer review
Publication version	Published version
Journal title	ESC Heart Failure
Numbering	vol. 8, no. 6, pp. 5542-5550
p-ISSN	2055-5822
e-ISSN	2055-5822
DOI	https://doi.org/10.1002/ehf2.13574
URN:NBN	urn:nbn:hr:105:524548
Publication	2021-12
Document URL	https://onlinelibrary.wiley.com/doi/10.1002/ehf2.13574
Type of resource	Text
Access conditions	Open access
Terms of use
Created on	2022-05-09 07:40:49