prikaz prve stranice dokumenta Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)
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Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)
ESC Heart Failure, 8 (2021), 6; 5542-5550. https://doi.org/10.1002/ehf2.13574
Sinning, Christoph; Zengin, Elvin; Diller, Gerhard‐Paul; Onorati, Francesco; Castel, María‐Angeles; Petit, Thibault; Chen, Yih‐Sharng; Lo Rito, Mauro; Chiarello, Carmelina; Guillemain, Romain; Coniat, Karine Nubret‐Le; Magnussen, Christina; Knappe, Dorit; Becher, Peter Moritz; Schrage, Benedikt; Smits, Jacqueline M.; Metzner, Andreas; Knosalla, Christoph; Schoenrath, Felix; Miera, Oliver; Cho, Mi‐Young; Bernhardt, Alexander; Weimann, Jessica; Goßling, Alina; Terzi, Amedeo; Amodeo, Antonio; Alfieri, Sara; Angeli, Emanuela; Ragni, Luca; Napoleone, Carlo Pace; Gerosa, Gino; Pradegan, Nicola; Rodrigus, Inez; Dumfarth, Julia; Pauw, Michel; François, Katrien; Van Caenegem, Olivier; Ancion, Arnaut; Van Cleemput, Johan; Miličić, Davor; Moza, Ajay; Schenker, Peter; Thul, Josef; Steinmetz, Michael; Warnecke, Gregor; Ius, Fabio; Freyt, Susanne; Avsar, Murat; Sandhaus, Tim; Haneya, Assad; Eifert, Sandra; Saeed, Diyar; Borger, Michael; Welp, Henryk; Ablonczy, László; Schmack, Bastian; Ruhparwar, Arjang; Naito, Shiho; Hua, Xiaoqin; Fluschnik, Nina; Nies, Moritz; Keil, Laura; Senftinger, Juliana; Ismaili, Djemail; Kany, Shinwan; Csengeri, Dora; Cardillo, Massimo; Oliveti, Alessandra; Faggian, Giuseppe; Dorent, Richard; Jasseron, Carine; Blanco, Alicia Pérez; Márquez, José Manuel Sobrino; López‐Vilella, Raquel; García‐Álvarez, Ana; López, María Luz Polo; Rocafort, Alvaro Gonzalez; Fernández, Óscar González; Prieto‐Arevalo, Raquel; Zatarain‐Nicolás, Eduardo; Blanchart, Katrien; Boignard, Aude; Battistella, Pascal; Guendouz, Soulef; Houyel, Lucile; Para, Marylou; Flecher, Erwan; Gay, Arnaud; Épailly, Éric; Dambrin, Camille; Lam, Kaitlyn; Ka‐lai, Cally Ho; Cho, Yang Hyun; Choi, Jin‐Oh; Kim, Jae‐Joong; Coats, Louise; Crossland, David Steven; Mumford, Lisa; Hakmi, Samer; Sivathasan, Cumaraswamy; Fabritz, Larissa; Schubert, Stephan; Gummert, Jan; Hübler, Michael; Jacksch, Peter; Zuckermann, Andreas; Laufer, Günther; Baumgartner, Helmut; Giamberti, Alessandro; Reichenspurner, Hermann; Kirchhof, Paulus Više autora...

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Sinning, C., Zengin, E., Diller, G., Onorati, F., Castel, M., Petit, T. ... Kirchhof, P. (2021). Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R). ESC Heart Failure, 8. (6), 5542-5550. doi: 10.1002/ehf2.13574

Sinning, Christoph, et al. "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)." ESC Heart Failure, vol. 8, br. 6, 2021, str. 5542-5550. https://doi.org/10.1002/ehf2.13574

Sinning, Christoph, Elvin Zengin, Gerhard‐Paul Diller, Francesco Onorati, María‐Angeles Castel, Thibault Petit, Yih‐Sharng Chen, et al. "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)." ESC Heart Failure 8, br. 6 (2021): 5542-5550. https://doi.org/10.1002/ehf2.13574

Sinning, C., et al. (2021) 'Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)', ESC Heart Failure, 8(6), str. 5542-5550. doi: 10.1002/ehf2.13574

Sinning C, Zengin E, Diller G, Onorati F, Castel M, Petit T, i sur.. Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R). ESC Heart Failure [Internet]. 12.2021. [pristupljeno 18.07.2024.];8(6):5542-5550. doi: 10.1002/ehf2.13574

C. Sinning, et al., "Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)", ESC Heart Failure, vol. 8, br. 6, str. 5542-5550, Prosinac 2021. [Online]. Dostupno na: https://urn.nsk.hr/urn:nbn:hr:105:524548. [Citirano: 18.07.2024.]

Za citiranje koristite ovu mrežnu adresu: https://urn.nsk.hr/urn:nbn:hr:105:524548
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Podaci o radu
Naslov (engleski)Study design and rationale of the pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA‐R)
AutorChristoph Sinning
AutorElvin Zengin
AutorGerhard‐Paul Diller
AutorFrancesco Onorati
AutorMaría‐Angeles Castel
AutorThibault Petit
AutorYih‐Sharng Chen
AutorMauro Lo Rito
AutorCarmelina Chiarello
AutorRomain Guillemain
AutorKarine Nubret‐Le Coniat
AutorChristina Magnussen
AutorDorit Knappe
AutorPeter Moritz Becher
AutorBenedikt Schrage
AutorJacqueline M. Smits
AutorAndreas Metzner
AutorChristoph Knosalla
AutorFelix Schoenrath
AutorOliver Miera
AutorMi‐Young Cho
AutorAlexander Bernhardt
AutorJessica Weimann
AutorAlina Goßling
AutorAmedeo Terzi
AutorAntonio Amodeo
AutorSara Alfieri
AutorEmanuela Angeli
AutorLuca Ragni
AutorCarlo Pace Napoleone
AutorGino Gerosa
AutorNicola Pradegan
AutorInez Rodrigus
AutorJulia Dumfarth
AutorMichel Pauw
AutorKatrien François
AutorOlivier Van Caenegem
AutorArnaut Ancion
AutorJohan Van Cleemput
AutorDavor Miličić
AutorAjay Moza
AutorPeter Schenker
AutorJosef Thul
AutorMichael Steinmetz
AutorGregor Warnecke
AutorFabio Ius
AutorSusanne Freyt
AutorMurat Avsar
AutorTim Sandhaus
AutorAssad Haneya
AutorSandra Eifert
AutorDiyar Saeed
AutorMichael Borger
AutorHenryk Welp
AutorLászló Ablonczy
AutorBastian Schmack
AutorArjang Ruhparwar
AutorShiho Naito
AutorXiaoqin Hua
AutorNina Fluschnik
AutorMoritz Nies
AutorLaura Keil
AutorJuliana Senftinger
AutorDjemail Ismaili
AutorShinwan Kany
AutorDora Csengeri
AutorMassimo Cardillo
AutorAlessandra Oliveti
AutorGiuseppe Faggian
AutorRichard Dorent
AutorCarine Jasseron
AutorAlicia Pérez Blanco
AutorJosé Manuel Sobrino Márquez
AutorRaquel López‐Vilella
AutorAna García‐Álvarez
AutorMaría Luz Polo López
AutorAlvaro Gonzalez Rocafort
AutorÓscar González Fernández
AutorRaquel Prieto‐Arevalo
AutorEduardo Zatarain‐Nicolás
AutorKatrien Blanchart
AutorAude Boignard
AutorPascal Battistella
AutorSoulef Guendouz
AutorLucile Houyel
AutorMarylou Para
AutorErwan Flecher
AutorArnaud Gay
AutorÉric Épailly
AutorCamille Dambrin
AutorKaitlyn Lam
AutorCally Ho Ka‐lai
AutorYang Hyun Cho
AutorJin‐Oh Choi
AutorJae‐Joong Kim
AutorLouise Coats
AutorDavid Steven Crossland
AutorLisa Mumford
AutorSamer Hakmi
AutorCumaraswamy Sivathasan
AutorLarissa Fabritz
AutorStephan Schubert
AutorJan Gummert
AutorMichael Hübler
AutorPeter Jacksch
AutorAndreas Zuckermann
AutorGünther Laufer
AutorHelmut Baumgartner
AutorAlessandro Giamberti
AutorHermann Reichenspurner
AutorPaulus Kirchhof
Autorova ustanovaSveučilište u Zagrebu
Medicinski fakultet
(KATEDRA ZA INTERNU MEDICINU)
Znanstveno / umjetničko
područje, polje i grana		BIOMEDICINA I ZDRAVSTVO
Kliničke medicinske znanosti
Interna medicina
Sažetak (engleski)
Aim: Due to improved therapy in childhood, many patients with congenital heart disease reach adulthood and are termed adults with congenital heart disease (ACHD). ACHD often develop heart failure (HF) as a consequence of initial palliative surgery or complex anatomy and subsequently require advanced HF therapy. ACHD are usually excluded from trials evaluating heart failure therapies, and in this context, more data about heart failure trajectories in ACHD are needed to guide the management of ACHD suffering from HF. ----- Methods and results: The pAtients pResenTing with cOngenital heaRt dIseAse Register (ARTORIA-R) will collect data from ACHD evaluated or listed for heart or heart-combined organ transplantation from 16 countries in Europe and the Asia/Pacific region. We plan retrospective collection of data from 1989-2020 and will include patients prospectively. Additional organizations and hospitals in charge of transplantation of ACHD will be asked in the future to contribute data to the register. The primary outcome is the combined endpoint of delisting due to clinical worsening or death on the waiting list. The secondary outcome is delisting due to clinical improvement while on the waiting list. All-cause mortality following transplantation will also be assessed. The data will be entered into an electronic database with access to the investigators participating in the register. All variables of the register reflect key components important for listing of the patients or assessing current HF treatment. ----- Conclusion: The ARTORIA-R will provide robust information on current management and outcomes of adults with congenital heart disease suffering from advanced heart failure.
Ključne riječi (engleski)
Jezikengleski
Vrsta publikacijeZnanstveni rad - Izvorni znanstveni rad
Status objaveObjavljen
Vrsta recenzijeRecenziran
Verzija publikacijeObjavljena verzija rada (izdavačev PDF)
Naslov časopisaESC Heart Failure
Brojčani podacivol. 8, br. 6, str. 5542-5550
p-ISSN2055-5822
e-ISSN2055-5822
DOIhttps://doi.org/10.1002/ehf2.13574
URN:NBNurn:nbn:hr:105:524548
Datum objave publikacije2021-12
URL dokumentahttps://onlinelibrary.wiley.com/doi/10.1002/ehf2.13574
Vrsta resursaTekst
Prava pristupaOtvoreni pristup
Uvjeti korištenjaIkona licence Imenovanje-Nekomercijalno 4.0 međunarodna (CC BY-NC 4.0)
Datum i vrijeme pohrane2022-05-09 07:40:49